Monthly Archives: March 2014

Q&A Patient Day Videos

The Question & Answer session videos from the National NET Patient Day in Kilkenny last November have been released and can be viewed on the NET Patient Day page <a href="http://netpatientnetwork over at this website.ie/index.php/annual-net-patient-day/” title=”Annual NET Patient Day”>here.

The Q&A videos are listed in the order as they were asked. We have removed the identify of the person who asked the question and replaced it with a slide to protect their privacy (those of you who asked questions will easily identify your contribution!). Some questions are long but we wanted to ensure the full content of how the question was posed is properly captured.

Global Carcinoid & NET Survey

First ever global survey specifically on Neuroendocrine Tumour (NET) Cancer

INCA (International Neuroendocrine Cancer Alliance) is trying to increase awareness and education about NETs worldwide by holding the first ever global survey of NET cancer patients.

We at NET Patient Network hope that you can spare 25 minutes to take the survey and that as many Irish patients as possible will participate.

You can take the survey here at <a href="http://net task management software.survey-source.com/” onclick=”__gaTracker(‘send’, ‘event’, ‘outbound-article’, ‘http://net.survey-source.com/’, ‘http://net.survey-source.com/’);” target=”_blank”>http://net.survey-source.com/.

As part of the survey, participants will have the chance to share their insights on the following topics:

•    The journey to a NET diagnosis

•    Living with and managing NET

•    Information and resources about NET that are available

The survey will also:

•    Contribute to critical data that will be used to raise awareness of NET

•    Help to better understand how INCA can assist theNET patient community

•    Help NET cancer researchers and physicians better understand the implications and impact of this disease.