Author Archives: eoin

NET Patient Network Information Videos Launched

NET Patient Network launched the first part of it’s major information initiative.

Three new videos featuring experts in Nets care and patients with first-hand experience of living with the condition have now been uploaded to our YouTube Channel.

The First video tells the story of the National Centre of Excellence at Saint Vincent’s University Hospital, Dublin.

The second video explains how the support group attempts to help patients and their families.

A Cork-based NETs patient presents the third video. It explains the range of services available to patients cared for by the Mercy University Hospital.

NET Patient Day 2018

Saturday Nov 3rd, 2018, Devere Hall, University College, Cork

The annual NET Patient Day 2018 will be held on Saturday November 3rd in Devere Hall, University College, Cork. More information coming soon.

NETs Centre of Excellence Awarded to St Vincents

St Vincents University Hospital in Dublin was recognised and awarded a Centre of Excellence certificate for NETs as the 39th ENETS Centre of Excellence at the ENETS Conference in Barcelona on Friday March 10th.

The NETs clinic in St Vincents was audited last November after our patient day. The review panel from ENETS was satisfied that the clinic meets its criteria for providing the best of care for NET patients under the ENETS Centre of Excellence programme.

This is a great achievement and underlines that all Irish NET patients should seek referral for review and/or second opinions to the NETs clinic in SVUH or through one of the satellites in Cork and Galway. The NET expertise is here and your best chances of survival are by getting clinical review and treatment advice through this centre of excellence.

We all know that the clinic in SVUH is not perfect and a lot more needs to be done. We need to push for more resources, more nurse availability, finalising the Ga-68 PET scanner, better and smoother referral options, and so many more.

However, this award is a positive step forward for NET patients in Ireland and sets NET services in this country on a formal setting. It gives us, NET Patient Network, the opportunity to ensure that NET patients have a voice which is heard and to give our feedback on how the direction and delivery of NET services in this country is working. As a patient group, we plan to use it.

NET Newsletter – October 2015

NET Newsletter – October 2015

NET Patient Day 2015, Sat Nov 14th, 2015, Cork University Hospital

The annual NET Patient Day 2015 will be held on Saturday November 14th in Cork University Hospital, Wilton, Cork (click here for location).,-8.510574,15z/data=!4m2!3m1!1s0x0:0x7ed8176dea5eafa5

The event is free and all Neuroendocrine Tumour and Carcinoid patients and their family and friends are welcome to attend.

Parking will be provided free by the hospital (car park tickets will be validated at the end of the day).
There will be free tea and coffee in the morning at registration and a light lunch of tea/coffee and sandwiches will be provided for free in the CUH canteen.

As always, we expect a great attendance and we are greatly supported by the NET clinicians form around the country who will attend.

Our international guests this year are Prof. Barbro Eriksson and Ms Jenny Falkerby from Uppsala. The emphasis this year is on the Q&A session with the NET clinicians which is always of great benefit to patients and their families. In the afternoon, we have a talk on “NETs and Nutrition” followed by “Mindfulness – Living with Cancer”.

We ask that if you are planning to attend, please let us know by sending an email to telling us how many will be in your party so that we can properly plan for lunch and seating.

See below for information on hotels.

Timetable for the event:

08.30 – 09.30 Registration with tea/coffee
09.30 – 10.30 Talks on Irish NET information
10.30 – 12.45 Open Q&A with NET practitioners
12.45 – 13.45 Lunch
14.00 – 14.45 NETs and Nutrition
14.45 – 15.30 Mindfulness – Living with Cancer
15.30 – 16.00 Wrap-up and closing address
We hope to see you all there.
Saturday November 8th 2014

Be sure to let us know that you are coming

Hotel Bookings for NET2015

For those of you that wish to stay in Cork on Friday before the event we have negotiated special bed and breakfast rates with two hotels.

When booking, be sure to mention NET Patient Network to avail of these rates.

Oriel House Hotel

First ten rooms at €99 B&B for double/twin or €70 B&B for singles
Thereafter, rooms are €109 B&B double/twin or €80 B&B for singles
Phone 021-4208400
Address – Ballincollig, Co. Cork
Approx 15 minute drive to CUH
Link to map:
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CUH is on the right of map

River Lee hotel

Twenty rooms allocated for Friday night at rate of €100 B&B for double/twin/single (no reduction for singles)
Ten rooms are currently allocated for Saturday night at the same rate
Phone 021-4252700 (ask for Deimante or Ruarí)
Address – Western Road, Cork (click here for location)
Approx 10 minute drive to CUH
Link to map:

To see CUH, follow the N22 towards the south west ( towards the bottom left corner of screen), then follow the N71 passing Dennehys Cross.

NET2015 Friday Night Get-Together

We would like to strengthen the NETs community by trying to get everyone together who is available on the Friday night before the NET 2015 event for a casual get-together and a chat.

We will meet up in the lobby or bar of one of the two hotels above on the Friday evening at 8pm and stay until about 10pm.

All the members of the NET Patient Network committee will be there and we would love everyone to come along and say hello.

We will let you know where exactly the get-together will be held closer to the event.