Many NET patients are concerned with the possibility of suffering from a carcinoid crisis during surgery as a result of receiving an anesthetic. Carcinoid crisis can be catastrophic if the medical staff are not prepared for such an event. Preparation requires the availability of sandostatin injections to prevent or combat carcinoid crisis if it should occur. Some Irish patients have experienced serious such crises during surgery. Other jurisdictions abroad have recognised this need and implemented ‘special protocols’ accordingly project planning software. NET Patient Network has written to Dr Susan O’Reilly of the NCCP asking her to investigate if a special protocol [...]
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The NCCP (National Cancer Care Program) has selected Neuroendocrine Tumours as one of the rare cancers that it wishes to examine as part of the restructuring of cancer care in Ireland. At a conference in Trinity College in November, the NCCP, the HSE and medical professionals in Ireland were joined by recognised international specialists in neuroendocrine tumours. A new unified strategy was agreed which would strive to create a centre of excellence in NETs in Ireland, linking St Vincent’s Hospital in Dublin with Mercy Hospital Cork and Galway University Hospital. A dedicated NET Consultant will be appointed to head this new [...]
A special National NET Patients Day was held in Trinity College on November 10th to coincide with the Worldwide NET Cancer Awareness Day. Dr Susan O’Reilly of the National Cancer Care Programme (NCCP) opened the patient event and gave an overview of the NCCP’s plan for NETs treatments in Ireland. Irish and International experts in the field of NETs participated in a rewarding open and robust question and answer session between doctors and patients go to the website. Following the open forum, the NET patients held an inaugural meeting of the NET Patient Network and voted a committee to oversee the [...]
The inaugural meeting of the Irish Neuroendocrine Neoplasm Group was held at Trinity College Dublin. Irish and international experts in carcinoid/NETs gathered to discuss advances in the field, diagnostic and therapeutic practices currently available in Ireland, as well as areas where Ireland is falling behind, especially in specialized nuclear medicine diagnostic and therapy tools. Commenting on the meeting, organiser and co-chair of the Scientific Committee, Dr Dermot O’Toole, Associate Professor of Clinical Medicine, TCD said: “This meeting afforded the opportunity for a diverse range of physicians and surgeons with an interest in this disease to come together for an educational day [...]