St Vincent’s NET Patients Only We have managed to receive special permission from Phlebotomy Dept in SVUH to allow NET patients to prebook an appointment slot to have their bloods taken look at more info. This will be especially useful for patients travelling long distances to SVUH to allow them to better coordinate having scans along with giving blood samples in the same day. Many of us have experienced trying to do this and then finding huge queues for bloods causing us to abandon our blood test as we have to go for our scans. This is a special concession for Neuroendocrine Tumour [...]
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The videos from our patient day are finally available! Sorry for taking so long to get these done but please check them out (click here). There are still a few more to be completed but hopefully these will be done very soon. You can view all of the videos on our YouTube channel by clicking here. Photos from the day are also available on our Flickr page by clicking here.
The NET Patient Network Goes Social We are delighted to announce that the NET Patient Network is going Social. While there are many different types of Social Media to choose from, we have decided that Facebook® offers the best mix of services to help our members. We have build our Facebook Page to make it easier for you to keep informed and various Facebook Groups for discussion. As of today, all members are welcome to join them, to help build the Community side of the NET Patient Network. We look forward to seeing you there and hope you will make use of the [...]
Saturday November 8th 2014<img class="size-medium wp-image-1026 alignright" src="http://netpatientnetwork.ie/netpn/wp-content/uploads/2014/10/NET-Patient-Day-2014-200x277 ms project cloud alternative.jpg" alt="NET Patient Day 2014" width="200" height="277" srcset="http://netpatientnetwork.ie/netpn/wp-content/uploads/2014/10/NET-Patient-Day-2014-200x277.jpg 200w, http://netpatientnetwork.ie/netpn/wp-content/uploads/2014/10/NET-Patient-Day-2014-738x1024.jpg 738w, http://netpatientnetwork.ie/netpn/wp-content/uploads/2014/10/NET-Patient-Day-2014-624x865.jpg 624w" sizes="(max-width: 200px) 100vw, 200px" /> St Vincent’s University Hospital, Dublin The 2014 Annual NET Patient Day will be held on Saturday November 8th in St Vincent’s University Hospital, Dublin, in recognition of it as the National Centre for Neuroendocrine Tumours. All NET patients and family are welcome to this free event! The theme this year will be about living with NETs. In the morning session we will have presentations by Irish NET specialists on how the system [...]
The Question & Answer session videos from the National NET Patient Day in Kilkenny last November have been released and can be viewed on the NET Patient Day page <a href="http://netpatientnetwork over at this website.ie/index.php/annual-net-patient-day/" title="Annual NET Patient Day">here. The Q&A videos are listed in the order as they were asked. We have removed the identify of the person who asked the question and replaced it with a slide to protect their privacy (those of you who asked questions will easily identify your contribution!). Some questions are long but we wanted to ensure the full content of how the question was [...]
First ever global survey specifically on Neuroendocrine Tumour (NET) Cancer INCA (International Neuroendocrine Cancer Alliance) is trying to increase awareness and education about NETs worldwide by holding the first ever global survey of NET cancer patients. We at NET Patient Network hope that you can spare 25 minutes to take the survey and that as many Irish patients as possible will participate. You can take the survey here at <a href="http://net task management software.survey-source.com/" onclick="__gaTracker('send', 'event', 'outbound-article', 'http://net.survey-source.com/', 'http://net.survey-source.com/');" target="_blank">http://net.survey-source.com/. As part of the survey, participants will have the chance to share their insights on the following topics: • The journey to a NET diagnosis • Living with and managing NET [...]
The Annual NET Patient Day 2013 was held in Kilkenny on Saturday November 9th. The event was a marvellous success. It was very well attended by NET patients and their families and friends who all benefitted enormously from the sharing of information and experiences. The leading medical specialists for NETs in Ireland attended from Dublin, Cork and Galway and participated in an open and frank Q&A session with patients. International guest speakers included Prof Per Hellman from Uppsala in Sweden who delivered a very informative presentation and Mr Bill Claxton who presented via webcam from Singapore but was unfortunately interrupted prematurely [...]
This is a FREE EVENT and ALL are welcome The timetable for the National NET Patient Day on Saturday November 9th in the Springhill Court Hotel, Kilkenny: 9.00am Tea/Coffee and Registration 10.00am Welcome address 10.15am Bill Claxton, Founder of Singapore NET Patient Group 10.45am Per Hellman, NET’s Surgeon, Uppsala, Sweden 11.15am Q&A Session with presenters and HSE 12.00 Lunch Served in Restaurant 13.15 Prof. Dermot O’Toole, National Lead for Irish-NET 13.45 Q&A Panel Session with Irish NET Clinicians 15.15 Tea/Coffee to be served with session closure 15.30 Patient and family only session 16.00 Wrap up and finish We [...]
The National Patient Day 2013 has been confirmed for Saturday November 9th in the Springhill Court Hotel in Kilkenny. The day will start with registration and tea/coffee between 9 and 10am. In the morning session we will have presentations from Dr Per Hellman, a NET surgeon, from Uppsala Neuroendocrine Centre of Excellence in Sweden and an online presentation by Mr Bill Claxton a pioneer in setting up NET patient support groups who will share his experiences in how NET patients can work together to improve services in their country. Following the morning session, we will break for a hot carvery lunch. In [...]
Professor Dermot O'Toole began his new NET clinic in St Vincent's Hospitel on Friday September 20th. The first patient seen was Mr Tom O'Donohue from Tippperary seen here with (l-r) Mr Justin Geoghegan, Prof. Dermot O'Toole, Mr Tom Donohue, Prof. Donal O'Shea and Ms Lisa Cullen.