May 14, 2014 at 10:09 pm #984
Garry again. Just to add that I am live in Dublin and am 69 years of age.
I had my surgeries and treatment in Beaumont Hospital and was only transferred to St Vincent’s last October when told that the cancer was back in my liver. I was made very welcome by the team and feel very comfortable under the professional care of Prof O’ Toole and Prof O’Shea and the availability of the Oncology nurse Lisa , is an added bonus.
I was very happy to discover the NET Patient Network as I felt very isolated with this rare form of cance and look forward to attending the next seminar /conference.May 15, 2014 at 6:47 am #985
Like Garry, I live in Dublin and am 69 years of age. I had my kidney surgery in Beaumont and was transferred to St Vincent’s where I attend for kidney and liver treatment and scans.October 3, 2014 at 2:06 pm #1010
My name is Terry and have just completed CT and MRI scans which show NET lesions in my liver. Original site was colon and had surgery in 2003 to remove NET and lymph nodes. Just got word today on treatment plan which includes monthly injection and possibly surgery in the new year and I am very pleased to finally have a plan to go with. Great to know that there are so many people that are alive and kicking with NETs.October 3, 2014 at 2:45 pm #1012
Welcome on board Terry …….sounds like we have a lot in common!October 5, 2014 at 7:28 pm #1016
H toi to everyone
Dawn from Kerry here. Just popped in to say I plan to be at the netpatient conference in St Vincents Nov 8th and look forward to meeting other members of this much welcomed forum. I had a typical carcinoid resected june 2012 ( lower left lobectomy) and was also diagnosed with DIPNECH at that time.
I actually lost one of my very dearest friends to NETs some 10 yrs ago now and could never have imagined my own health journey would run so parallel to hers. Having her in my life has helped me so much to not be too scared of where my own journey may now lead. It is two fold emotions that come with knowing this type of cancer is slow growing, yes at time I get huge strength from knowing that, other times I can almost feel myself suffocating knowing that at any follow up after scans you may be told there is growth/change/new nodule/. Most days I just get on with living and enjoying life. Looking fwd to meeting some of you.DawnOctober 6, 2014 at 2:13 pm #1037
Good to hear from you Dawn. My follow up scan is next week and I agree that it is a “scary” time but all we can do Is live in hope.
Look forward to meeting you on 8thNov.October 7, 2014 at 12:58 am #1039
just want to wish you the very best with your scans. Fingers/toes crossed.
look forward to meeting you. Wondering how we will recognise each other and other members too ??? Might dye silver head green lol. Good luckJanuary 12, 2015 at 4:08 pm #1078
I think I know the name! I lived in Dundalk for a 7 years in the eighties. Hope you are doing well!
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