hello my name is anne from mayo
found out i have neuroendocrine carcinoid in may 2013
small bowel and liver had surgery in vincents in sept
am now on sandostatin lar monthly as new small tumour found in liver after last ct had first inj 2 weeks ago ok so far bit of diarrhoea but not bad
still have not got used to having it yet nice to read of other peoples experiences as i do not know anyone who has this type cancer
Hi Anne, I found out that I had Carcinoid Cancer in Feb 2012 and was operated in June 2012. I have very bad Carcinoid Syndrome. I’m awaiting tests in Jan to see if the cancer has spread as my symptoms have majorly increased.