Irish Support and Advocacy Group
for Neuroendocrine Cancer patients
and their families

Are You Newly Diagnosed?

You are not alone!
As an Irish Patient Group, we have years of experience that will help you
understand Neuroendocrine Tumours (NETs) and what is available to you in Ireland.

Start Here!

What we do

Patient day events

Meet the active
and close community annually

Real stories and advice

You are not alone.
Learn about other patient’s experiences

Knowledge database

Browse studies, data, informational
videos and get the latest NET news.



Global Patient Information Pack

Visit our link and download free factsheets on neuroendocrine tumors
in 10 languаges.


NETs are often called the ‘quiet cancers’

Awareness and knowledge are the key to give voice to patients


The latest news

This is the right place to get support by welcoming professionals, experts and patients.

  • Carcinoid Syndrome & Carcinoid Crisis
    The Centre of excellence at St. Vincent’s Hospital have provided us information on prevention and Management of Carcinoid Syndrome & Carcinoid Crisis. Up until now, we … Read more
  • NET Patient Day 2023
    NET Patient Day 2023 has been decided, it will be Saturday 18th of November, beginning at 9 AM. This year we are going back to Cork … Read more
  • The NET Patient Network Is Now A Charity
    For many years patients & family members have asked the NET Patient Network if they can support us. We are a voluntary organisation, so it took … Read more