Next we have Facebook Groups.

Facebook Groups are used for discussion and to keep our discussions private, only members of a group can see discussions within each group.

For example, when you first go to the group, you will see no discussions, but once you join, you will see the discussions, but even then, you will not be able to see discussions in other groups until you join them.

For the moment, there are three Groups, set-up, Administered & Supported by two of our members, Eoin O’Leary & Mary O’Brien.

1) The Main Facebook GROUP (below), is for everybody, Net Patients, Caregivers  & Family members.

2) The Net Patients Only Group, no Caregivers or Family members allowed.

3) The Caregivers Only Group, no Net Patients or Family members allowed.


The Main Facebook GROUP

NET Members Group

When you are on the NET Patient Network Main Group, the image above is what you will see.

For your own privacy, please take the time to familiarise yourself with this image, so that you post in the correct group.

Anyone on Facebook can REQUEST to join this group, but the NET Patient Network “Administrator” of the Group, must give permission for the person to be a member.

All NET Patient Network members, Caregivers & Family members can join this group.

As with all future Facebook Groups, our Main Group is a Private group, so only Group members can view posts, not ordinary Facebook account holders.

To Join

If  you already have a Facebook account, please join the Main Group right now, from the link below.
Make sure you are signed-in to your Facebook account and when you get to the Group, just click, “Join”.

An “Administrator” of the Group will look at requests to join ASAP, but there may be a delay before you have access. You can expect to have access within 48 hours during a week day, maybe longer during the weekend.

If you do not have a Facebook account yet, all you need is your eMail address & think of a password for the account.

Here is the link to the Main Group, (opens in a new Internet Browser window).
Please Join Now!


Depending on whether you are a NET Patient or a Caregiver to a NET Patient, please follow the appropriate link below for instruction on how to join.

Net Patients Only Group, no Caregivers or Family members allowed.


Caregivers Only Group, no Net Patients or Family members allowed,

Thank you